I hope you’ve all had an amazing weekend. It’s been a bit of a hot second since I popped on here but I’ve honestly been trying to catch my breath lately. This week alone has been crazy. Our sweet Brinley was born with amelogenesis imperfecta and I had to drive her down to Nanaimo on Tuesday to get her back six teeth crowned. It was a big ordeal since she’s so small. Then on Wednesday we left for Vancouver for Rhetts big week at Children’s Hospital full of appointments and his big surgeries on Friday. We didn’t come home from Vancouver until Saturday Night.
There’s going to be a lot packed into this blog, so hopefully I don’t lose you! My heart really hurts from this week. I continually felt like I let Rhett down, like I didn’t fight hard enough or try hard enough. But, lets back up and I will tell you WHY I even had these emotions.
On Thursday we spent all day at the Hospital. His first appointment was at 8:30 AM and we had appointments all day without break until 5 PM.
The last appointment was for his surgery prep the next morning so we were going over everything, how long he had to stay in the hospital etc.
An ENT doctor we had never met who was doing his residence came into talk to us to go over our sleep apnea test. We just thought it was procedure.. but turns out, the ENT who agreed to do the surgery, had never even looked at the X-Rays and sleep apnea test. ( Yes, I know, mind blown )
I try really really really hard to show everyone grace. But when we had spent 9+ hours in the hospital that day with 3 kids under 7 and had come so far and took 4 days off work, we were pretty upset.
See, the test proved that Rhett had severe sleep apnea, which would require him to have an ICU bed and much more staff on hand after surgery.
Thing is, when the ENT asked us questions about Rhetts sleep habits/patterns, what we said contradicted with the results on the test. We do not think he has severe sleep apnea as he doesn’t snore that loud, gasp for air or anything that a typical person with severe sleep apnea would do.
Because of this, they refused to do the surgery until he has a much more invasive sleep apnea test done at Children’s so they can prove how severe he is, so they can gauge what precautions to take.
Before you go on judging me for being upset with the doctor let me say this: I’m beyond thankful that the doctors are being cautious. What I’m not grateful for is that they couldn’t even take 2 minutes to go over Rhetts sleep apnea results and they shouldn’t have agreed to the surgery in the first place until they had more testing.
We have been holding on for dear life it seems for the day he could finally get his adenoids out because he’s been SUCH a cranky and fussy little guy from birth.
I’ve done extensive research on this and I’ve had multiple doctors agree with me that this kid NEEDS his adenoids out.. they can cause such discomfort and a lot of other issues.. so that’s why it’s been so imperative that we get them out. Rhett is now 14 months. 14 months of being uncomfortable.
That being said, it is cancelled until we can get approved to do a sleep study at Children’s Hospital which could be in a month or six months.. it’s yet another waiting game and more time that our little guy has to be uncomfortable.
On the plus side, I have to share about our experience at the Marriott Pinnacle Downtown Hotel.
Not only is this hotel beautiful, amazing staff, super central to everything downtown and only an 11 minute drive from the Hospital, but you won’t believe what they did for us..
On our last day there, I was checking out and taking some photos of the lobby to post in this blog and the Director of Operations (Tamara) heard about what happened at the hospital and walked over to me, arms stretched out and teary eyed and offered that our hotel stay be covered when we return for his surgery.
I couldn’t believe it. This was the ENT’s fault, yet the Marriott Pinnacle Downtown are taking a bit of the load off of us. That’s the kind of service you will receive when you go there. Of course, they won’t offer a free stay to everyone.. but for example, since Rhett is now drinking whole milk instead of breastmilk, every time we called room service to bring up milk, they would have it delivered in under five minutes! We’ve been to many hotels where the room service would take anywhere from 30-60 minutes, so this was a HUGE plus for us.
Also, after about an hour of us being there, room service brought up cookies and milk for the kids and a yummy brie/cracker platter for us to enjoy! It’s these little things that make a hotel feel like home away from home. Being a ‘hospital mama’ as I like to call myself, is stressful. You’re always going to appointments and for us, all over. Victoria, Nanaimo, Vancouver etc. It feels like we’ve barely been home since the end of January. So when hotels take a little extra to make our stay special, it makes it an unforgettable experience!
The hotel is also super central as mentioned above. Our sister was able to come and watch the kids for a few hours one night and Glen and I went to the Cactus Club for drinks. It was only a few hundred meters away!
If you’re looking to get away for an anniversary, a mini vacation or even if you have hospital visits like us, I highly recommend the Marriott Pinnacle Downtown. I honestly have nothing bad to say about this hotel. It was super clean and beautiful and of course, the staff was super lovely. Such an amazing experience and how they treated us when we left was just the icing on the cake. It left me wanting to cry. ( But I’m not a cryer )
On Friday, instead of going home we decided to spend the day as a family, which I feel we haven’t done in months. We’ve been so busy with work and appointments that our heads have been spinning!
It was such a gorgeous day in Vancouver and we decided to take advantage of the sun! We decided to explore Granville Street and grab some grilled cheese sandwiches from a food truck!
I also got to explore Anthropologie for a little bit.. Oh how I wish I had a trust fund. 😉
This store is so inspiring to me, there are so many corners of this store that I’m just obsessed with!
So what’s happening in the future? Well, more crazy.
We will continue to wait to have these dang adenoids out. We have to get a sleep study done in the hospital before they can preform the surgery on our little Rhetty.
In early May I’m having my breast reduction and I will be unable to really do a ton for the month of May.. so I’m hoping that I can take May to recharge and gain energy that I’ve lost since basically having Rhett.
I just wanted to thank so many of you for checking in on us and praying, thinking or just sending encouragement here and there.